Thursday morning

We slept well.  Doubled John's morphine and still give it every hour.  He isn't "waking up" or responding although when I talk to him, he'll raise his eyebrows and his breathing changes some.  Since he can't swallow the applesauce, we're back to the original pill atavin {sp} crushed and in a drop of water under his tongue, instead of his regular seizure med in applesauce.  The morphine is liquid.  We're cutting back on the other two agitation drugs.
He drank quite a bit yesterday so his cath bag was at 500 ml for the third day.

There was a little "scare" in getting his morphine yesterday.  On Tuesday, they put in another order for it because we were going to run out.  Our Dr. Chemo, who is our prescribing physician still, faxed the order to our Publix at 5:30.  The pharm was running behind, and when I asked the pharmacist about it at 6 p.m., he hadn't realized it was liquid.  He didn't have any.  Lake Ella Publix did.  He'd have to fill out paperwork to get the Hospice order transfered there but "if I have to call every Publix in the State of Florida, I'll get you some tomorrow."  Everything was approved and Daddy picked it  up on Wednesday from Lake Ella.  Only he didn't pass the test.  Didn't know John's address [PO Box number], did know our phone number, didn't know something else....but they let him have it.  Glad I didn't have to go crazy on them!!
love John's pharmacist

Thursday P.M.
Giving the morphine every hour and a half.  Have given 2 doses of the drops to help with congestion. 
This afternoon, John had a couple of coughing fits  where he opened his eyes.  Almost immediately they rolled back in his head.  He will often wiggle his foot and this morning only, raised his eyebrows a couple of times.  He's been non-responsive all day.  The night on-call nurse from last Wednesday came again today.  Our regular nurse was in a meeting all day.  She helped me change John's bandage, and I'm constantly amazed at the changes in the bulge.

Daddy was our only visitor today, but we've had lots of phone calls.  Haven't wanted to talk to people.  Nothing new to say.

Tomorrow is John's birthday.