Today is Saturday. Yesterday was Friday. Rough Thursday night, early start to Friday. Back to bed after b'fast. Home health lady came. We enjoyed her very much. She spent a long time working on getting the gunk out of John's hair. Marvin visited again. John always enjoys when he comes. Mama came, then Miss Kathy from school, and her sister, Pastor from Havana and his wife. She made chicken and dumplins and brought a warm bowl for our dinner.
And it began again. Fidgets, mumbling, leg jerks. Took a pill, then another. Fought the battle for three hours. I called Hospice at 11:30 and within 10 minutes, John was finally asleep. The nurse came and took out a relaxer from our "comfort kit." Gave John 2 doses during the night. He fussed with his legs again during the night. Has now slept almost all day. It's 4 p.m. Saturday.
"Grandma" Causey from down the road brought him a burger and Valentine balloon, and me a flower to put in the yard. Mama is back, and Sharon came to cut John's hair, but he's been asleep the whole time. John's "pull-ups" are not holding the flood of urine. Mama and I changed his clothes and sheets. His home health lady would laugh at the time we had getting the sheets changed. Keeping the relaxer in his system so he'll stay relaxed.
PooPotpouri is a great product for "that" smell. I put it in the bedside potty and it covers odors.
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John finally woke up tonight around 6:30.
wide awake
He fussed around until time for his med. With it he ate a hamburger, banana, cookie, and diet coke. Mama picked up the namebrand Depends, and it worked much better tonight. He lets out such a flood that the pull-ups are not holding it all. Hopefully these will work better.
John has spoken very few words today. Even awake he isn't talking voluntarily. The responses he does give are quiet, short, and his usual weird language. His eyes focus for the most part, but when he's about to drift off the sleep, the blank stare comes back. He hasn't even tried to get out of bed today. This is the first day he's never gotten up. Mama and I decided to not put pajama bottoms back on him. It wears out John and me trying to get them under his bottom after having done the same with the pull-ups. He hasn't complained or acknowledged that he notices. Will talk with the nurse about getting him a catheter. She offered it as an option for "one day" and I know John hates them, but it would save a lot of grief for us both. The nurse can break the news to him!
It's been a quiet, sort of sad day. Another major marker passed.
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